Archive for the ‘volunteer’ Category

VMG Inaugural Volunteer Management Conference a Success

Wednesday, April 1st, 2009

463px-symbol_thumbs_up_svg1The inaugural VMG Conference for Nonprofit Volunteer Management held on Friday, March 27, 2009, at Hostos Community College, Bronx, NY, was a huge success. Attendees experienced a one-day event of presentations and networking to empower and motivate them to go back to their offices and improve their programs. The day kicked off with an energetic, engaging and timely keynote speech from Eileen Kennedy, founder and CEO of The Kennedy Factor. Eileen’s keynote touched on paradigm shifts, Maslow’s Higherarchy of Needs, and a motivational video “212 Degrees”, and readied the crowd to be open-minded and in a mindset to absorb the information to make a change in the way they perceive the potential of their volunteer programs.

Followed by Eileen was the morning breakout session offering two choices depending on if you were a newcomer to the field or developing a new program, or if you were experienced in the field with an established program. Jerry Pannozzo, a consultant and trainer in the field for over 15 years, offered a quality introductory presentation focused on a 7-Step model covering how to Vision, Champion and Plan your program (first 3 steps of the model were covered in morning session). Alex Collier presented a Nuts & Bolts approach to getting your staff involved, selling your program and retaining volunteers. Both session received extremely positive feedback. At 11 am, Janice Hoffmann, a career and lifestyle coach, offered a motivational talk on the Power of Wow, covering how to double your goals to achieve something great and how to design and shoot to achieve a WOW project. How do we make a volunteer experience a WOW exerience, Janice had great advice on how to create the WOW experience. Lunchtime offered the attendees an opportunity to network. Some attendees were college grad and undergrad students and I could tell they took advantage of the opportunity to seek advice from some of the mid-career attendees.

Just after Janice finished speaking, I mentioned that we all need to stay focused on our goals no matter what obstacles life puts in front of us. For myself, I had to set aside my career ambitions temporarily to focus on dealing with my breast cancer diagnosis. After sharing some hopefully motivating words with the audience, I had a particularly heartfelt encounter with a young woman who went through a double mastectomy and reconstruction just recently. She looked so young and in fact was just 30 years old. I admire her courage and strength. We discussed what each of us had been through. I realized how important it is for me to tell my story, always, at any opportunity. All women must be knowledgeable about their breast health.

The afternoon was fabulous. We had the afternoon breakout sessions, 7 Step Model Part 2 and Project Management for Volunteer Projects. Jerry lead a discussion on the remaining 4 steps for the 7-Step Model: Train, Measure, Monitor and Adapt. I lead a session on project management. I was pleased with the presentation. I was hopeful that the audience would be open to learning some of the project management terminology and best practices. I feel this information is critical to the success of creating well-executed projects.

The day ended with a panel discussion on corporate volunteer opportunities. Marlo Tablante from Goldman Sachs, Pam Haas from IBM, Maria Collins from New York Life and Eileen Kennedy from The Kennedy Factor each participated in answering questions from the audience. The panel was so informative. I find it’s always so helpful to hear first-hand how employee volunteer programs are operated. It was beneficial to the audience to learn how to engage a corporate partner and what to expect from business employees as volunteers.

At the end of the day I was so happy to have executed my first VMG Conference. I just loved meeting all the attendees and coordinating the entire event. I hope everyone benefitted a great deal. From the survey responses I’ve received, it sounds like the event was very useful for the attendees and I look forward to doing more events of this type in the near term.

Julie’s Breast Cancer Story

Sunday, March 1st, 2009
Julie Marks at Komen Race for the Cure

Julie Marks at Komen Race for the Cure

I was diagnosed with breast cancer in September 2007. I had a double mastectomy in October. I completed 8 rounds of chemotherapy. It’s been a really crazy several months.

How it all started? I had been having really bad back pain in my lower back last summer and was going for xrays and mri’s and even tried acupuncture and all different stretch exercises and things to treat the back pain and it still persisted. During a routine check up my doctor said I should have a baseline mammogram and so I did that in July. They saw something suspicious so they called me back for another mammogram on the left breast and then they called me back for an ultrasound and ultimately a biopsy which was positive. I immediately contacted an old friend who is a top of the line breast surgeon and he treated me like gold. He gave me a great consult and whisked me through the necessary tests and breast surgery. Everything happened very fast from the time of diagnosis to surgery to even now- it all feels like a blur or a dream(or should I say nightmare).

Even though I had the cancer in the left breast, I elected for a double mastectomy. I just didn’t want to be dealing with this again in the future with the other breast, plus the silicone implants would look a helluva lot better if I did both boobs :) After the surgery I came to convalesce at my brother’s place – 2 brothers and my parents live in same area and all work together so I had family to support me throughout. After recovering a bit at my brother’s I went back to my apartment in New York City and my cousin came to live with me and take care of me. I couldn’t do anything for myself because my chest and arm muscles were not working after the operation and took a long time to heal. As the weeks turned to months I regained my full range of motion and still have slight chest muscle debilitation, it will get back to normal eventually.

I started chemo about 8 weeks after surgery and that was extremely trying. I laid around on the couch a lot feeling extremely tired because the chemo whacks the white blood cells and that is what made me so tired. A month after chemo I had my silicone implants. I’m very happy with them. At this time I go to the breast clinic once a month for a bone drug that is to prevent any future spread of the disease.

I was fortunate in that due to the mammogram this was caught in an early stage, Stage I. I had been checking my breasts regularly and never felt a lump, so I feel very lucky this was detected. It was 1.9 cm (the size fo a dime) and did not spread to the lymph nodes which is a huge plus. They did a full body scan of me and did not see anything anywhere else. So all is looking good and I continue to have the same very positive attitude as from the beginning. As scary as something like this can be, I’ve just taken it day by day and done all the proper things according to the doctors and am really taking care of myself. I’ve had tons of support from family and friends, and that has been so helpful to me. I really am doing quite well now given the entire situation. The best way you can support me is to make a donation to my Race effort.

Thank you!
Julie

 


Julie, Matt, Joe and Steve (circa 1982)

Remembering my mom

My mother battled breast cancer from the age of 27 to 30 when she died. I remember visiting my mom in the hospital with my Aunt Annie. I remember going into the room to see my mom for just a short while and then my aunt would take me out into the corridors of the hospital to walk around and we’d look at the artwork on the walls. I remember my mom wanting to eat applesauce in the hospital. I remember being sad that she was there and couldn’t come home with us. I don’t remember much about my brothers or my father during this time. I guess one can only recollect so much. I remember my mom taking me to a roller skating party at the high school and she fell on the floor. I looked back and she was laying there, so thin and fragile, yet looking beautiful. I was sad mom fell. I knew she had a breast cancer metastesis to the lung and I told my sixth grade teacher about this.

I was at my grandparent’s when I was told she died. My dad, my Aunt Annie and my grandma took me into the bedroom. My dad said, you know how I told you your mom has been very sick, and I knew the rest. That was all he had to say. I knew the rest and I started to scream and cry hysterically. I walked out of the bedroom and into the living room. I saw all of my cousins sitting on the floor watching TV. I immediately felt different from them. I knew in that instant that I didn’t have a mom and they did and I felt different and alone, like I had this big sign on my forehead or something. I didn’t like that feeling of everyone looking at me and knowing I didn’t have a mom. I felt ashamed for some reason, and very sad.

When she died and my family gathered at my grandparent’s, I always thought everyone was at my grandmother’s house at that time for a holiday but now that I’m older and looking back, I realize they were all there because my mom died and everyone had come together for this reason. It was very windy that day I found out she died and I was out in the back field behind my grandmother’s house flying kites with my cousins and my father asked me if I wanted to go to my mom’s funeral. I said I didn’t want to go and that was that. He didn’t make me go. In retrospect, I suppose I should have gone, but when you are ten years old you can’t really make these kinds of important decisions and who is to say that the experience of being at her funeral wouldn’t haunt me forever.

Life after my mom died was lonely. I remember coming home from school and I would just cry and cry. I’ve carried the emptiness of my mother’s death all these years. In some way, I’ve been able to process her loss through my own illness. The picture at the above right is me and my brothers not long after my mother passed away. When I look at this photo I can’t help but think my mom should be in the center with all of us around her. No child should have to lose their mom to breast cancer.

The following is a poem my mom had quoted in her journal.

God’s Goodness

The Lord is good in all his ways,
Oh, don’t give way to doubt,
For sure, the Purpose will unfold,
His Good He worketh out.
When tempests come and trials hard,
He’s ever near the same,
And leaning on His matchless Grace,
Just call upon His name,
Tis soon you’ll find His Presence,
Even at the sparrow’s fall,
To those in joy or grief alike,
He’s still the All in All.
So, Saint remember when the dark
And deep is all about,
That God is Gracious in all things,
And good He’s working out!

- Paul Durham

 


Julie & AJ in the Hamptons Labor Day Weekend 2008

Komen New York City Race for the Cure®

On Sunday, September 14, 2008, the Greater New York City Affiliate of Susan G. Komen for the Cure will be holding its 18th annual 5K run/walk — the Komen New York City Race for the Cure® — its premier fundraiser.

On that day 22,000 New Yorkers, including 1,500 breast cancer survivors, will come together to run breast cancer out of town.

One in eight women in the US will be diagnosed with breast cancer in her lifetime. In 2008, that’s over 170,000 people. More than 40,000 will die.

Monies raised are used to fund education, screening, and treatment programs for underserved women in the NY metropolitan area, as well as for local and national peer-reviewed clinical research. Donations are tax deductible.

Last year, Komen Greater NYC raised over $5.2 million, which allowed it to fund more than $3.8 million in grants and research.

With your help, this year’s Race for the Cure® will be even more successful, and Komen Greater NYC will be able to award more grants in 2009.

Julie’s Blog

Topics

Race Day was a Huge Success! Thank you everyone!
I had a terrific weekend. Rachel, my sis-in-law, and I were in the city for the Race for the Cure. It was a hot and humid morning on Sunday. We went to Central Park around 9 a.m. and saw thousands of people making their way through the park to the start of the Race. It was very inspiring to see all of the pink t-shirts that survivors were given to where. Feeling the energy and positive vibes of the other participants is what made it all so worthwhile. Having thousands of people come together just demonstrates how many people this disease affects and how many people want to get out there and do something about it. After the year I’ve had in dealing with this disease, it felt so good to be able to focus my attention on something to make a difference and I’m so grateful to all of my family and friends for their financial contributions to this cause.

by Julie Marks on Mon, Sep 15, 2008 @ 10:05 AM

3 Weeks to the Race!
Three weeks from today is the Race for the Cure. I’m really getting excited and I’m thrilled with the results of the fundraising so far. I’m so touched by the responses from friends and family. My sister-in-law, Rachel, signed up to participate with me and I’m so excited she’ll be joining me. We are looking forward to the day of the Race, all the people coming out to support this cause, and all the awareness it will generate. I’ve diligently been sending out my emails and even letters trying to raise money. It’s been incredible to see people’s responses. I’ve gotten several heartfelt emails and letters from friends and family members telling me that I’m in their thoughts and prayers and it’s great to see me healthy again. It all means so much to me. Getting breast cancer really was the pits, it shouldn’t happen to anyone .But seeing that it did happen and I had to deal with it, I can only try and see the positives – and one of those is how much closer I feel to my friends and family. Another is how joyous I am about life overall. I thought I was living a full life before I went through all of this, but I had no idea. I mean, I can feel inside of myself that I’ve become more grateful and joyous,and I’m only getting started on my new journey! I just want to send out a huge THANK YOU to everyone supporting me. Your kindness and generosity is showing that we can all make the world a better place – and hopefully a world without breast cancer!

by Julie Marks on Sun, Aug 24, 2008 @ 9:25 PM

I’m touched by everyone’s generosity!
I did a round of emails on Friday and over $400 in donations came in. I’m so touched by people’s generosity. It means so much to me that you are supporting this Race. I had a wonderful weekend at the shore with my brother, his wife and her parents. Saturday morning was particularly special as I took a 7a.m. stroll on the beach. The sun was glistening on the ocean and the sky was a beautiful azure. I truly felt in touch with my soul and with God. I thought about all the days I couldn’t even pick myself up out of bed, no make that all the months I couldn’t pick myself up out of bed, and I felt truly blessed to be taking this walk. I’m grateful for God restoring my strength, for healing me and giving me life back. I also watched the swimming races for the Olympics. I’m thrilled that the men won the relay last night and I was thrilled to see Michael Phelps take the gold. I enjoyed seeing these Olympians compete – their bodies in amazing physical form, their focus and dedication is inspiring. Raising funds and awareness for breast cancer is extremely important to me and I feel it is necessary for all women to have the information, education and care they need. Thank you for making a donation. And if you haven’t donated yet, please make your donation today! THANK YOU!

by Julie Marks on Mon, Aug 11, 2008 @ 1:17 PM

It’s August already?!
Wow, time is really flying by. I hope everyone is having a great summer. I know I am. It’s so good to be alive and enjoying the beautiful weather. I’m feeling pretty good these days and life is getting back to “normal”. I still go to the breast clinic once a month for a bone drug that is to prevent anything spreading in the future. Thank God for this drug being provided through clinical research (oh, I forgot to mention this is a clinical trial phase 3). Please support me in this Race so we can fund research to help find a cure for breast cancer and also support those organizations out there who are helping women battling this disease. Thanks and don’t forget to use your sunscreen! Now get out there and enjoy the weekend. Cheers, Julie

by Julie Marks on Fri, Aug 08, 2008 @ 12:59 PM

Awesome launch!
I managed to email my friends and family and let them know I’m doing the Race. I was so excited to get that first email notification that a gift was made. My friend, April Roberts, donated $50! Yea! Thanks, April. And, my friend, Vilasinee Bunnag, said she will run this with me! Yea! Thanks V! I’m so excited. Ok, now everyone else who received my email, please join the race or make a contribution. Your $20, $25, $50 or $100 gift will help me reach my goal. I set a goal of $1,000. I need more friends to join me. Will you be one?

by Julie Marks on Thu, Jun 19, 2008 @ 1:49 PM

And I’m off!
Today I registered for the Komen NYC Race for the Cure. I’m very excited about participating in this event and raising awareness and funds for breast cancer. Thanks to everyone who visits my web page and registers to participate or makes a contribution. Together, we can make a difference!

by Julie Marks on Wed, Jun 18, 2008 @ 2:02 PM

http://www.volunteermanagementgroup.com